Helping you to Deliver

Providing support within the rare disease community can be challenging. Charities are having to advocate for improved care with less resources, and yet the demands for their time are ever increasing.  It is impossible for many smaller charities and patient organisations to have the expertise and infrastructure in house to undertake research and create policy recommendations that make a meaningful difference.  With my knowledge and expertise in policy relating to rare diseases and my experience of supporting rare disease patient organisations and charities, I can help to support your needs one project at a time.

Expertise and knowledge of rare disease market access strategy and policy is essential if you are working on a project in the rare disease space.   Some projects require expertise and knowledge that you don't have within your team or that may require some additional strategic oversight that you don't have the capacity to deliver.   Working with me on a freelance basis allows you the access to that expertise and knowledge as and when you need it.

Launching an orphan medicine in the UK can be complex.  Understanding the policies and processes you need to engage with, to ensure your medicine can reach the people who need them, can be challenging due to a fragmented system.  Knowing who to speak to and when is critical.  If you are a small to medium size company launching your orphan medicine into the UK market, it is unlikely that you have the dedicated resource in house to ensure you manage all of these processes.  Bringing my expertise, knowledge and extensive network, I can help to simplify the processes and create a clear launch strategy.